I include here, in chronological order, E's condition from 4 to 13 April as reported by volunteers from CSX (Chang Shen Xue - 长生学) and WC, an NPC support group member.
Apr 4, Sun - Sms from WC : E is in pain. K thinks he can’t go in a taxi.
(Note : I had actually planned for E to receive chakra healing therapy at Kim Mui Huay Kuan from 4 to 8 April, 5 continuous days of therapy, as our teachers would be present. I had felt that with many years of experience each, it would be a good opportunity for E to make progress.)
After much persuasion from WC, K (E's mum) agreed to bring him for chakra adjustment therapy.
Apr 6, Tue -
4 CSX teachers from Taiwan + a couple of volunteers
Mr W, our principal teacher, gave him therapy as well while he was being transferred to the ambulance to be sent home.
More than an hour of chakra adjustment therapy
K brought E to Kim Mui Huay Kuan where CSX was conducting training for new students.
E was in a lot of pain and we had much trouble transferring him from the front passenger seat of the taxi to his wheelchair.
His skin had a tinge of yellow as compared to 24 Mar when he was at Gleneagles. He also had red spots on his head (rashes-?).
K mentioned that E started having fever in the morning.
E had to be treated while seated on his wheelchair.
2 CSX teachers from Taiwan attended to him.
Initially, E was very uncomfortable and kept asking to be sent home. 2 more CSX teachers from Taiwan were requested to attend to him and they were joined by a couple of CSX volunteers.
His condition stabilised and he fell asleep on the wheelchair. After more than an hour of therapy, he was sent home by ambulance.
Sms from WC : K said doc gave E 2 weeks.
Apr 7, Wed -
CSX volunteers : 3
About 2 hours of chakra adjustment therapy
They reported that he was fine.
Sms fr WC : TCM Dr Long saw E. Said E has a clear mind, his heart and lungs are good, so he still has a chance.
Sms fr WC : E sat on wheelchair. He could carry a packet of ensure milk in his hands and drink.
Sms fr WC : E wants to do chakra adjustment therapy although he could not explain why. Said his fever was brought down by chakra adjustment.
Apr 8, Thu -
CSX volunteers : 2 in the morning and 2 in the afternoon
About 2 hours of chakra adjustment therapy in the morning and more than 1 hour in the afternoon.
When the volunteers arrived in the morning, E was already seated on the wheelchair, and fed himself breakfast at the table. He could wheel himself around on his wheelchair.
Chakra adjustment therapy was done on him while he was on the wheelchair and he kept dozing off. After about an hour on the wheelchair, he awoke and requested to be transferred to bed, where he soon fell asleep while the therapy progressed.
The therapy session was about to be wrapped up when one of E's family friends came and K told the volunteers that they were bringing E for some bio-----(?) treatment.
E was fine throughout and did not complain of pain.
The afternoon volunteers said E reached home after 3pm. They did chakra adjustment for him while he was lying in bed and did not notice anything unusual about him.
Sms fr WC : E is in good spirits today.
Apr 9, Fri -
CSX volunteers : 2 started at 9.30am and were to be relieved by another pair at 11am.
The first pair started at 9.30am and the second pair was requested to go over earlier at 10+am. The whole team continued till about 12+.
When the first pair arrived, E was lying in bed and did not seem to be in good spirits.
He had a big red patch on his left hip.
Throughout, he could not fall into deep sleep and constantly complained of pain on his right ribcage and especially on his right lower leg and sole of his right foot. K switched on the aircon as E was perspiring and also she was concerned about the red spots on his head.
The second pair was scheduled to take over at about 11am, but had been requested to go over earlier to help with the other chakra points, spinal column and vital organ as E was in a lot of pain and the first pair had to help E manage his pain.
E’s pain was so intense that he even felt the pain when the energy flowed through him during the chakra adjustment. Also, his heart was racing and he was breathless.
The volunteers stopped at his request, and he was really down.
He had not complained of pain the day before, and he said that the pain was very mild the day before, but it was very severe then, about the same level as on 6 Apr.
He said it was because of the wheelchair, probably meaning the transfer between wheelchair and car. K requested for break from chakra adjustment therapy on Saturday and Sunday.
Sms fr WC : E is ok and in good spirits. He has settled down. He knew the pain is due to moving him on Thursday. Rash on head subsided.
Sms fr K : E is ok now, but still in pain.
K had requested for a break from chakra adjustment therapy for Saturday and Sunday.
Apr 11, Sun -
Sms fr K fwded by WC : K had brought E to Malacca today for TCM treatment as she said that E was in a lot of pain these past few days, and didn’t really want to eat.
Apr 13, Tue
Sms fr K : E’s pain has improved slightly and he does not need much pain killer. However, his red blood cell and platelet count is still quite low.
I understood that he had gone for blood transfusion while in Malacca.
Reflection :
Here are some of my thoughts on E's case.
1. As a cancer patient myself, I must admit that I failed to comprehend the magnitude of E's pain. As I was not with E all the time, I had to depend on K to provide me with updated and detailed information of his condition. However, I understand K's desperation and state of stress and confusion her mind is in, so it would be reasonable to assume that K may not have been able to convey the necessary information concerning his mobility and transfers in relation to his pain level.
2. It did not occur to me then, that the coordinator might have a list of volunteers that we could call on for help. It was a coincidence that the coordinator was also involved in organising the April 3 - 8 training class as well as helping young cancer patients in KKH. Initially, there was not enough volunteers to provide E with daily therapy.
With my limited information and resources, I had then requested K to bring E down to the adjustment centre in Kg Senang on 31 Mar, Wednesday, and subsequently to the training centre at Kim Mui Huay Kuan on 4 - 8 April. This request was made as I felt E would have a better chance where we have more experienced volunteers at Kg Senang, and at the training centre, where our teachers are available. I had also hope that E could have received 5 straight days of therapy from the teachers which would be a great benefit to him. For transportation, I had obtained information on a private ambulance that provided 2-way transfer at a very reasonable rate.
However, K only managed to bring E down on 6 April after much persuasion from WC. Now, I realised that it could be K knew it would not be easy to move E by car, but she did not specifically mention this problem to me. In fact, she told me that E could sit in a car with the seat reclined.
Nevertheless, even with whatever information and resources I had then, I felt and still feel that WC and I have done our best, especially WC, and that whatever decisions we have made or course of action we have chosen, they were deemed to be the best at that time and taken with E's interest at heart.
From E's case, every obstacle we came across and every step we took is knowledge and experience gained.
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